In partnership with Cure GM1 Foundation
Basion organizes your health, finds your options, and fights for your access to care.
Letters, lab results, scans, insurance forms. Take a photo of each one or forward the email and Basion files it in a simple timeline you can show any doctor.
Ask “What does this result mean?” or “What should I ask at Tuesday’s appointment?” You get a short, clear answer and the page it came from.
Before each visit you get a one‑page summary. When a trial or support group opens near you, you hear about it first.
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A plain-language guide for families: what these two approaches are, how they differ, and what a new research paper adds to the picture.
GM1 and GM2 are close cousins, but they are distinct diseases caused by different genes and different missing enzymes. Where the two actually diverge.
From the first clinical descriptions to modern therapeutics — nearly a century in which GM1 was read as Tay-Sachs, until biochemistry told the two apart.
“Every day I use Basion for many different reasons: for example, it lets me access all of my daughter's medical documentation instantly, and to check every piece of news, whether it has a scientific basis or not. By now it has become an irreplaceable travel companion — and above all, one I trust completely.”
“I've been navigating a personal health crisis for my daughter for 13+ years and nothing has ever helped me as much to assist me in fighting for her life, while simultaneously running a foundation, advancing scientific research, engaging with FDA regulatory processes, and managing a profoundly complex caregiving reality.”
“Basion helps me organize and retrieve my child’s medical records, prepare documents for appointments and advocacy, and stay on top of the questions and follow-ups that can easily get lost when caring for a child with a rare disease. It turns overwhelming information into practical next steps, helping me advocate more confidently while leaving more room to simply be a mom.”
You are not alone. Join other families who are navigating the GM1 disease.
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